{"id":5906,"date":"2022-11-22T13:05:34","date_gmt":"2022-11-22T12:05:34","guid":{"rendered":"https:\/\/unescochair-ghe.org\/?p=5906"},"modified":"2022-11-22T13:08:12","modified_gmt":"2022-11-22T12:08:12","slug":"webinar-improving-inclusion-of-children-living-with-a-rare-disease-through-curriculum-transformation-28-november-2022","status":"publish","type":"post","link":"https:\/\/unescochair-ghe.org\/fa\/webinar-improving-inclusion-of-children-living-with-a-rare-disease-through-curriculum-transformation-28-november-2022\/","title":{"rendered":"Webinar: Improving inclusion of children living with a rare disease through curriculum transformation &#8211; 28 November 2022"},"content":{"rendered":"<p>UNESCO-IBE is organising a webinar on &#8220;Improving inclusion of children living with a rare disease through curriculum transformation&#8221;, co-organised with the Agrenska Foundation and Rare Diseases International and taking place on 28 November 2022 2:00-4:00 PM &#8211; Geneva time &#8211; (UTC+1).<\/p>\n\n\n\n<p>Panelists:<\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Yao Ydo &#8211; Director, UNESCO-IBE<\/li><li>Anders Olauson &#8211; Founder and Chairman of Agrenska\u202fFoundation&nbsp;<\/li><li>Flaminia Macchia &#8211; Executive Director of Rare Diseases International (RDI)\u202f&nbsp;<\/li><li>Florence Migeon &#8211; UNESCO, Programme Specialist, Inclusive Education Expert<\/li><li>Gunilla Jaeger &#8211; Senior Advisor Agrenska Foundation<\/li><\/ul>\n\n\n\n<ul class=\"wp-block-list\"><li>Carlos David Pe\u00f1a Aragon\u202f- Head of Social Networks, Federaci\u00f3n Mexicana de Enfermedades Raras (FEMEXER), lives Gaucher disease\u202f(Mexico)\u202f&nbsp;<\/li><li>Eda Selebatso\u202f- Founder of Botswana Organization For Rare Diseases (BORDIS) &#8211; Mother of two children living with different rare diseases\u202f(Botswana)\u202f&nbsp;<\/li><li>Mark\u202fRogers\u202f- Parent of a young adult living with\u202fDiGeorge Syndrome (New Zealand)<\/li><li>Nikita\u202fVan Dijk\u202f- University student and patient advocate living with Ehlers-Danlos syndrome\u202f(New Zealand)\u202f&nbsp;<\/li><li>Robin Yoon\u202f- M.D. Candidate, Georgetown University School of Medicine\u202f(USA)\u202f&nbsp;<\/li><li>Sook Yee Yap\u202fand\u202fJaden Lim\u202f- We Care, Journey &#8211; mother and son, Jaden lives with Growth Hormone Deficiency and Pituitary Microadenoma (15), and his brother lives with SMA Type One\u202f(Malaysia)\u202f&nbsp;<\/li><\/ul>\n\n\n\n<p>To attend the webinar, register\u00a0<a href=\"https:\/\/unesco-org.zoom.us\/webinar\/register\/WN_fLY9Q7WITmGJnL_F9OT09A\"><strong>here<\/strong><\/a>.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"665\" height=\"367\" data-src=\"https:\/\/unescochair-ghe.org\/wp-content\/uploads\/2022\/11\/Webinar-28-november-2022.jpg\" alt=\"\" class=\"wp-image-5907 lazyload\" data-srcset=\"https:\/\/unescochair-ghe.org\/wp-content\/uploads\/2022\/11\/Webinar-28-november-2022.jpg 665w, https:\/\/unescochair-ghe.org\/wp-content\/uploads\/2022\/11\/Webinar-28-november-2022-300x166.jpg 300w, https:\/\/unescochair-ghe.org\/wp-content\/uploads\/2022\/11\/Webinar-28-november-2022-18x10.jpg 18w, https:\/\/unescochair-ghe.org\/wp-content\/uploads\/2022\/11\/Webinar-28-november-2022-373x206.jpg 373w\" data-sizes=\"(max-width: 665px) 100vw, 665px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 665px; --smush-placeholder-aspect-ratio: 665\/367;\" \/><\/figure>","protected":false},"excerpt":{"rendered":"<p>UNESCO-IBE is organising a webinar on &#8220;Improving inclusion of children living with a rare disease through curriculum transformation&#8221;, co-organised with the Agrenska Foundation and Rare Diseases International and taking place &hellip;<\/p>","protected":false},"author":3,"featured_media":5909,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1],"tags":[23,9,51,27],"class_list":["post-5906","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-children","tag-education","tag-inequalities","tag-webinar"],"_links":{"self":[{"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/posts\/5906","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/comments?post=5906"}],"version-history":[{"count":2,"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/posts\/5906\/revisions"}],"predecessor-version":[{"id":5910,"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/posts\/5906\/revisions\/5910"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/media\/5909"}],"wp:attachment":[{"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/media?parent=5906"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/categories?post=5906"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/unescochair-ghe.org\/fa\/wp-json\/wp\/v2\/tags?post=5906"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}