UNESCO-IBE is organising a webinar on “Improving inclusion of children living with a rare disease through curriculum transformation”, co-organised with the Agrenska Foundation and Rare Diseases International and taking place on 28 November 2022 2:00-4:00 PM – Geneva time – (UTC+1).
- Yao Ydo – Director, UNESCO-IBE
- Anders Olauson – Founder and Chairman of Agrenska Foundation
- Flaminia Macchia – Executive Director of Rare Diseases International (RDI)
- Florence Migeon – UNESCO, Programme Specialist, Inclusive Education Expert
- Gunilla Jaeger – Senior Advisor Agrenska Foundation
- Carlos David Peña Aragon - Head of Social Networks, Federación Mexicana de Enfermedades Raras (FEMEXER), lives Gaucher disease (Mexico)
- Eda Selebatso - Founder of Botswana Organization For Rare Diseases (BORDIS) – Mother of two children living with different rare diseases (Botswana)
- Mark Rogers - Parent of a young adult living with DiGeorge Syndrome (New Zealand)
- Nikita Van Dijk - University student and patient advocate living with Ehlers-Danlos syndrome (New Zealand)
- Robin Yoon - M.D. Candidate, Georgetown University School of Medicine (USA)
- Sook Yee Yap and Jaden Lim - We Care, Journey – mother and son, Jaden lives with Growth Hormone Deficiency and Pituitary Microadenoma (15), and his brother lives with SMA Type One (Malaysia)
To attend the webinar, register here.